One Step Forward …

December 18, 2009

You write check after check for tens and tens of thousands and thousands. You invest in special schools, doctors, diets, and therapies. Hours become days. Days become years. You give everything. You give stuff you didn’t know was in there because you have no choice. You didn’t ask for this, but you were given this miraculous little puzzle, so it’s what you do. You commit for the long haul.

Others have no such vested interest.

You want to shake them and grab them by their collars and say, “See?! Can’t you see what progress he’s made?! Do you have any idea how hard he’s worked? Can’t you see how far he’s come?!?!”

Can’t you see how far he’s come?

But the world-renowned center sends you a report clinically damning his progress.

“Autism will be a life-long condition …”

Yeah. No kidding.

And the schoolyard moms - some seemingly closer to his age than mine and fresh out of their newly minted SUVs - try not to make eye contact with that boy or his father.

“You should really watch your child.”

Yeah? No kidding?

He often looks at me and says “I’ll try harder, daddy.”

Me too, buddy. Me, too.

Let us give thanks for the special people in your life. Let us be thankful and grateful. For Miss Audrey and Miss Nadia and Miss Kelly and Miss Teresa and Miss Lechelle and Dr. Holly and Dr. Baptist and even that daffy Dr. Amy. Therapists who don’t give up and teachers who care. And mama … especially your warrior mama. Let the gratitude wash over the rage and drown it for another night.

Tomorrow’s a new day. Tomorrow we’ll get back to work. Tonight, let’s just hug and snuggle and dream. And pray maybe a little. And breathe deep a lot.

All is calm. All is bright. Tomorrow’s a new day.

Amen.

One Step Forward … Two Steps Back …
You give them tens and tens of thousands of dollars. You invest in special schools, diets, and therapies. Hour after hour after hour.
Years go by.
You want to shake them and grab them by their collars and say, “See?! Can’t you see what progress he’s made?! Do you have any idea how hard he’s worked? He’s a freaking genius!?”
But the other moms - fresh out of their newly minted SUVs - try not to make eye contact with him or his dad.
The world-renowned center most famous for their ability to raise money sends you a report clinically damning his progress.
He often looks at me and says “I’ll try harder, daddy.”
Me too, buddy. Me, too.
I’m unplugging for a few days. You should do the same. Go hug your kids or snuggle with your dog or read a book. And pray, maybe. A little. And breathe, deep. A lot.
All is calm. All is bright.
Amen.

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{ 7 comments… read them below or add one }

Lynn December 18, 2009 at 7:35 pm

words fail and tears fall. please know how much you are loved.

Reply

Tim December 19, 2009 at 9:38 am

We know. It’s a new day. Life is grand, and it’s a little grander because you’re here with us.

Reply

JoeyH December 18, 2009 at 8:32 pm

Will, no doubt, has a much richer life than those schoolyard moms. His moments are brighter…his love deeper…his faith stronger. God has smiled on him by giving him two of the best people I know as his parents.

Reply

Tim December 19, 2009 at 9:43 am

You’re incredibly kind, man. Thanks for that.

Reply

Michael Mendelssohn December 19, 2009 at 9:49 am

Tim,

It is hard to fathom the choice some make to see what is wrong or different as bad. Will is a strong, smart, lovely boy who one day will provide this world something only his vision could provide. Wait and see. My grandfather used to whisper to me everyday that “I make the magic, by what I do daily.” then he would ask “What will you do today Michael? “

Reply

Tim December 19, 2009 at 9:54 am

Hi Michael,

You’re very kind. Ya know - the mama in question’s maybe a 25-year-old - I know I was an idiot who thought I knew everything at 25. We all grow. Will, me, you, her. Hope it’s a great day. Your grandfather was clearly a wise man.

Reply

jane December 21, 2009 at 9:57 am

Amen.

Reply

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